Palliative Adult Network Guidelines (Fourth Edition)

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Hardelid P, Dattani N, Gilbert R (August 2014). "Estimating the prevalence of chronic conditions in children who die in England, Scotland and Wales: a data linkage cohort study". BMJ Open. 4 (8): e005331. doi: 10.1136/bmjopen-2014-005331. PMC 4127921. PMID 25085264. ; Lay summary in: "Most children with life-limiting conditions still die in hospital, not home or hospice". 20 July 2021. doi: 10.3310/alert_46991. S2CID 242843746. Edwards D, Anstey S, Coffey M, Gill P, Mann M, Meudell A, Hannigan B (December 2021). "End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)". Palliative Medicine. 35 (10): 1747–1760. doi: 10.1177/02692163211037480. PMC 8637363. PMID 34479457. WHO Definition of Palliative Care". WHO. Archived from the original on 4 October 2003 . Retrieved 4 December 2019. Yes. You do not have to stop seeing other health and social professionals who support you. You can have palliative care alongside care from the specialists who have been treating your particular illness. Is palliative care just about treating pain and other physical symptoms?

Palliative care is appropriate for individuals with serious illnesses across the age spectrum and can be provided as the main goal of care or in tandem with curative treatment. It is provided by an interdisciplinary team which can include physicians, nurses, occupational and physical therapists, psychologists, social workers, chaplains, and dietitians. Palliative care can be provided in a variety of contexts, including hospitals, outpatient, skilled-nursing, and home settings. Although an important part of end-of-life care, palliative care is not limited to individuals near the end of life. [1]

Autism Spectrum Conditions: end of life care and accessing healthcare services

Strang P, Strang S, Hultborn R, Arnér S (March 2004). "Existential pain—an entity, a provocation, or a challenge?". Journal of Pain and Symptom Management. 27 (3): 241–250. doi: 10.1016/j.jpainsymman.2003.07.003. PMID 15010102. In-Home Palliative Care Allows More Patients to Die at Home, Leading to Higher Satisfaction and Lower Acute Care Utilization and Costs". Agency for Healthcare Research and Quality. 3 April 2013. Archived from the original on 14 March 2020 . Retrieved 9 July 2013. In the 1960s, hospice pioneer Cicely Saunders first introduced the term "total pain" to describe the heterogenous nature of pain. [42] This is the idea that a patient's experience of total pain has distinctive roots in the physical, psychological, social and spiritual realm but that they are all still closely linked to one another. Identifying the cause of pain can help guide care for some patients, and impact their quality of life overall. [43] Physical pain [ edit ] Palliative care can be an option for many conditions. Some of the most common conditions where palliative care can be especially helpful are: Many terminally ill people cannot consume adequate food or drink. Providing medically assisted food or drink to prolong their life and improve the quality of their life is common, however there have been few high quality studies to determine best practices and the effectiveness of these approaches. [59] [60] Pediatric palliative care [ edit ]

Specialist palliative care is one component of palliative care service delivery. But a sustainable, quality and accessible palliative care system needs to be integrated into primary health care, community and home-based care, as well as supporting care providers such as family and community volunteers. Providing palliative care should be considered an ethical duty for health professionals. Evidence that palliative care services increase the likelihood of dying at home and reduce symptom burden without impacting on caregiver grief among the vast majority of Americans who prefer to die at home. [28] Caregivers, both family and volunteers, are crucial to the palliative care system. Caregivers and people being treated often form lasting friendships over the course of care. As a consequence caregivers may find themselves under severe emotional and physical strain. Opportunities for caregiver respite are some of the services hospices provide to promote caregiver well-being. Respite may last a few hours up to several days (the latter being done by placing the primary person being cared for in a nursing home or inpatient hospice unit for several days). [100]policies for strengthening and expanding human resources, including training of existing health professionals, embedding palliative care into the core curricula of all new health professionals, as well as educating volunteers and the public; and The following resources may be used to determine if a patient is nearing the end of life, and give recommendations of how treatment should be tailored to their specific requirements.