MND SUCKS but we are strong MND Awareness broken heart T-Shirt

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How to find support if you experience pain, particularly if due to problems with movement or mobility. Bulbar (mouth and throat) symptoms England Rugby League’s Men and Women return to international action on Saturday 29 April for the first time since last year’s Rugby League World Cup – a double-header with France at Warrington which is the launchpad for a game-wide fundraising effort in aid of the MND Association. Identifying difficult emotions that may happen for people with a diagnosis of MND and their carers. This guide includes how to seek support and the different therapies available. Former Leeds Rhinos scrum-half Rob Burrow MBE was diagnosed with motor neurone disease in December 2019, just two years after ending his playing career by captaining Leeds to a record-extending eighth Super League Grand Final. This booklet includes guidance on how communicate about MND with family, children, friends, colleagues and health or social care professionals.

A new marathon to honour rugby league legend Rob Burrow MBE launched this year, with the MND Association named as a charity partner.

Guidance on intimacy for anyone affected by MND. The booklet explores ways to maintain physical connection with disability, this inclusive content offers support whether in a relationship or not, and regardless of sexuality. An interactive version of the ADRT form included in information sheet 14A - Advance decision to refuse treatment (ADRT) and advance care planning. If you become unable to make decisions or communicate, an ADRT allows you to state in advance which treatments you wish to refuse or withdraw in specific circumstances. The following items are all designed to help you make other people aware of your needs, wishes or preferences. Using our forms to record your needs Our booklet containing information answering possible concerns about sexual expression and intimacy, for anyone affected by MND. Guidance on riluzole, which is the only drug licensed in the UK to help treat MND. Physical therapies

RL Commercial Managing Director, Rhodri Jones, says: “For the third year running our partners at Oxen, together with RL Commercial, are supporting a cause close to the hearts of so many in Rugby League. Our relationship with the MND Association follows our work with the Mose Masoe Foundation in 2021 and fundraising for Tongan tsunami relief in 2022 when both England and the Combined Nations All Stars wore Tonga-inspired shirts. Information about Kennedy’s disease, which is a separate, but similar condition to MND and is supported by the MND Association.

Oak & Black

Researchers at Southampton University have developed a web-based patient decision aid for people with MND considering a gastrostomy tube. It aims to help people living with MND choose whether they want to have a gastrostomy tube fitted now. If they decide not to go ahead, they may want to revisit the decision later. The shirt represents three things I love dearly: England Rugby League; the MND community and, of course, Rob. Throughout Rob’s diagnosis the Rugby League world has got completely behind him. It shows the impact he had and continues to have on the sport. And the players who get to wear it will feel incredibly proud to represent Rob and their country – they’ll feel 10 feet tall. Guidance on how ventilation can be withdrawn, if wished, and questions to raise with the professionals who support. Suggestions on ways to manage everyday personal care tasks such as washing, dressing and intimate care with MND. This booklet contains information about equipment and services that could support you to prolong independence with everyday tasks and how to access them.